This is a blog to tell stories about being a mother to our son Ben, his disability, our family and our lives in London.
Ben is 9, loves stories, Michael Rosen and being cycled around as fast as possible . He enjoys jokes and is surrounded by a loving, extended family. He has a younger brother, Max, and a younger sister, Molly. All of these names are pseudonyms but the photos and stories are real.
Ben has cerebral palsy. This means he finds it hard to control the muscles of his body and needs support to sit and stand. He has difficulty talking though he makes noises to tell us how he is feeling. Ben mainly communicates by smiling and looking at objects, things, pictures or an eye-gaze computer.
Ben finds eating and drinking difficult so is fed and hydrated through a gastrostomy tube in his stomach.